Resources
As a researcher, it has always been my goal to share knowledge with others. I have done it throughout my professional career and why should cancer be any different? Throughout my cancer journey, I have been gathering data, talking to experts, writing down my own tricks and tips, and brainstorming with individuals on their own journeys. I now finally have a place to put it all! So, check it out!
THE LINKS BELOW ARE STILL UNDER CONSTRUCTION...check back soon
Recommended blogs & websites
Jonathan Grossman
"CDH1 mutation carrier. Thriving without a stomach since June 1, 2018. Although I do not have a medical degree, I have been researching, writing about, and orally explaining complicated medical and biotechnology issues since 2005. I excel at understanding and organizing complicated technical issues and explaining them in simple terms. I hope you benefit from my work on CDH1 mutations and total gastrectomies."
Jonathan Grossman, www.cdh1gene.com
Firefly Sisterhood
"Breast cancer is complex. Support shouldn’t be. At Firefly, we’re celebrating 5 years of connecting women diagnosed with breast cancer to inspirational survivors for hope, healing, and encouragement. Breast cancer may be complex, but Firefly makes getting support easy."
Firefly Sisterhood
www.fireflysisterhood.org
Hereditary Diffuse Gastric Cancer (HDGC)
MISSION
"To support Hereditary Diffuse Gastric Cancer (HDGC) translational research that leads to improvements in the health and well-being of those affected by HDGC, and to provide relevant, reliable information and resources to help individuals and families understand their risk, make informed decisions, and advocate for themselves."
HDGC
www.hereditarydiffusegastriccancer.org
